I've been seriously ill, having to be hospitalized in Intensive Care for six weeks. It felt like everything that could go wrong DID go wrong. I had a sickle cell crisis in my chest (conveniently named sickle chest), the most severe sickle cell crisis leaving you unable to breathe without assistance from either a ventilator or oxygen mask. Every breath you take during sickle chest feels like someone continuously stabbing you in the chest, making it excruciatingly painful and difficult to breathe. I also had double pneumonia, which is pneumonia in both lungs. That adds much difficulty to breathe also. My blood levels went down dramatically causing severe anemia. I received seven blood transfusions that I'm aware of, although it could have been much more. I blacked out often leaving me unaware of my treatment at times. Finally, my legs and feet began to swell to the point where my socks cut off my circulation. A sonagram of my legs revealed a painful blood clot right at the bend of my knee. I'm still enduring very painful physical therapy and taking blood thinners to dissolve the clot so that I may walk without a limp and crutches again. And this sickle cell crisis was by far the absolute worst pain I've ever endured. My husband and parents were constantly by my side, and they are the reason I fought to recover rather than surrendering and accepting an inevitable death.
Since being discharged from the hospital, I don't take anything for granted and my relationships with my hubby, family and friends are iron clad! When I was in ICU fighting to live, I held my husband's hands and told him that whether I live or die its God's will. I told him that he's the love of my life and I've cherished every second of our marriage. I told him I'd love him forever...
My point is that whatever struggles you have in life, God has a purpose for all of us and sometimes its hard to accept that his plan for us may differ from what we've envisioned for ourselves. My sickle cell pain often keeps me from doing what I've planned for the day. But God's plan may be different from my plans. They say the way to make God laugh is to tell him your plans for your life. His will is going to be done regardless!
Sickle cell is the hugest inconvenience for me...I've got countless Doctor appointments, physical therapy, speaking to counselors about my pain, pain management therapy, flushing my Mediport(an implanted device used for receiving blood transfusions and IV fluids), blood thinning injections...the list goes on and on. And I've also got a husband, a wonderful doggie(Isabella),a new house and my job(I own a Public Relations Firm with a non profit division that provides mentoring and scholarship opportunities to children with sickle cell). It gets difficult juggling all my responsibilities, but God has a plan for us all and I find that my pain subsides whenever I think about how blessed I am and that God's will will be done!
I consider myself obsessive compulsive, and I always have a plan...planning for the future, my work, my marriage and just about everything else and I'd get sooo upset whenever I veered away from "the plan". The day I realized that I'm not in control and I'm living to serve God's will was the day I stopped being so obsessive and learned to cherish and learn from every life situation. I encourage everyone dealing with an unexpected life "hiccup" to just stop wherever you are and give Christ all the praise. Thank Him for granting us His favor and thank Him for the struggles. No one is able to love us like he does.
My non-profit business, The Duchess' Dolls, is a mentoring and support group for anyone enduring hardships and pain(whether you have sickle cell, are a caregiver or family member). God works miracles every day. Be encouraged...you're special and in His favor. Please contact me if you need someone to speak to. Any day, anytime.
The Duchess Public Relations, in conjunction with TKay Collections, is working to present the First Annual Sickle Cell Forum on July 17 and 18. We will be having a board of Doctors discussing Gene Therapy, the most recent findings on a cure for Sickle Cell! There will also be discussions on alternative methods of pain management and paint therapy for children! This will be at Hotel Highland next weekend. This forum is open to the public, and I encourage anyone with sickle cell as well as relatives and caregivers to come learn and fellowship with people with similar struggles/challenges.
I'm an advocate for individuals with sickle cell and I want to meet anyone needing support. I understand the pain we endure each day and we can lift each other up in faith. Through God, all things are possible and with Him we can achieve our goals. I love you all, Dolls!
XoXo,
The Duchess
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